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A voice for rare disease patients at the PPRS negotiations?

  • 20/04/2018

Within the last week formal discussions on the new Pharmaceutical Price Regulation Scheme (PPRS) have begun between the Department of Health and Social Care (DHSC) and Industry, via the ABPI. The existing PPRS, the agreement between government and the pharmaceutical industry regulating the price of branded medicines, ends on the…

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Spring Statement suggests NHS funding is all to play for

  • 13/03/2018

Though evidently pleased finally to have some parliamentary activity to report, predictions by the press that this new, “fiscal news delivery” format would prove to be a dull affair, were somewhat justified. Chancellor Philip Hammond was on his feet for just over 20 minutes, the majority of which was dedicated…

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Westminster turnout for Rare Disease day

  • 01/03/2018

February 28th was Rare Disease Day, and in recognition of this important, yet often overlooked group of conditions, we attended the Westminster Reception hosted by Rare Disease UK (RDUK) supported by the All Party Parliamentary Group for Rare, Genetic and Undiagnosed Conditions. Large numbers of people, including, policymakers, industry and…

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Keeping up with the science

  • 07/02/2018

Last week, Westminster played host to the Decideum facilitated IPPR event ‘Keeping Up With The Science: The Future of Health and Care in the UK’. Leading figures from government, industry and academia gathered to discuss  innovation in the NHS and the need for long-term reform and additional funding. Notable speakers…

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It’s all in the planning – at least let’s hope so

  • 30/01/2018

Can the long-awaited plans for delivering on the strategy for rare disease finally make a difference to patients' access to healthcare? The Rare Disease Strategy implementation plans for England have been jointly published by the Department of Health and Social Care and NHS England.  Four years after the Strategy was…

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New Year New Health

  • 10/01/2018

The newly minted Department for Health and Social Care headed by Jeremy Hunt, has been augmented by the appointments of Caroline Dinenage MP and Stephen Barclay MP (with the fate of departing minister Philip Dunne MP surely sealed by his disastrous appearance in the House this week). Presumably there is…

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Life Sciences Sector Deal

  • 06/12/2017

The first of a series of 'sector deals' was announced today, which is aimed at expanding the themes and ambitions set out by the government's recent Industrial Strategy.  The very fact that the Life Sciences industry has been awarded the privilege of being the first of these deals to be…

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Government publishes draft industrial strategy

  • 28/11/2017

The Government launched its Industrial Strategy white paper and confirmed that the first Life Sciences sector deal will be signed in the next few weeks. Setting out how Britain is to become more competitive, innovative and productive to 'boost the earning power of people across the UK', the Government has…

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Could ISPOR shed any new light on VBP?

  • 09/11/2017

Value Based Pricing. The term is a familiar one though perhaps still rather ill-defined. It is a concept that has for nearly 10 years now been heralded as an important way to ensure the price of a drug is reflective of its true value. VBP was directly addressed or at…

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