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Can the long-awaited plans for delivering on the strategy for rare disease finally make a difference to patients’ access to healthcare?

The Rare Disease Strategy implementation plans for England have been jointly published by the Department of Health and Social Care and NHS England.  Four years after the Strategy was announced, this is welcome news for the 3 million people who suffer from a rare disease and the countless people who take in an interest in their welfare.  As an area of advancing science amidst massive unmet medical need, the Government, together with NHS England will be closely scrutinised for its ability to deliver on the 51 recommendations set out by the Strategy .

We have distilled what we know from the plans published so far into this handy briefing note for you.

Splitting the plans between the two bodies is an unusual move and many of us will be following closely to ensure there is strong accountability for both agencies to meet their commitments.

Read our briefing here (300Kb PDF)

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